WellData Implementation Guide
0.1.0 - ci-build
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Data that is stored in Solid pods is organized in containers and resources. Access can be granted to containers and resources. But in order to find data back and not to share too much information to an application, we propose an organisation structure of data in the pod as follows. The structure follows the resources definitions from FHIR.
For instance if an application is looking for a specific questionnaireResponse, the application should only be given access to the container where all questionnaireResponses are stored.
To also include information about the resource in the container that is used to store resources, we propose to include the namespace of the FHIR resource as URL encoded.
All information in Welldata will be placed under the following root container of We Are:
<user pod>/weare/
Information about the patient that fits in the FHIR resource patient must be stored at the following location:
<user pod>/weare/https%3A%2F%2Fwww.hl7.org%2Ffhir%2FPatient/<uuid>.ttl
Information that will be stored in the resource:
Observations are stored in the pod at the following location as a FHIR resource
<user pod>/weare/https%3A%2F%2Fwww.hl7.org%2Ffhir%2FObservation/<uuid>.ttl
Observations can contain all measured values about a patient. In our project we cover the following observations with the according SNOMED-CT or Loinc codes:
| Name | Description | CODE | Intake vragenlijst | GGDM | Zipster | Selfcare |
|---|---|---|---|---|---|---|
| physical_limitation | aanwezigheid fysieke beperking | 32572006 (Snomed) | x | x | ||
| length | Lengte (cm) | 50373000 (Snomed) | x | x | x | |
| weight | Gewicht (kg) | 27113001 (Snomed) | x | x | x | |
| Waist_circumference | Buikomtrek (cm) | 276361009 (Snomed) | x | x | ||
| SBP | Systolische bloeddruk (mmHg) | 271649006 (Snomed) | x | x | ||
| cholesterol_total | Totaal cholesterol | 77068002 (Snomed) | x | x | ||
| cholesterol_hdl | HDL cholesterol | 02737005 (Snomed) | x | x | ||
| cholesterol_ratio | Totaal / HDL cholesterol | 313811003 (Snomed) | x | x | ||
| stress | Stress ervaring | 68011-6 (Loinc) | x | x | ||
| daily_life | Dagelijks leven | 91621-3 (Loinc) | x | x | ||
| social_contact | Voldoening uit sociale contacten | 61581-5 (Loinc) | x | x | x | |
| physical_exercise | beweegminuten | 228450008 (Snomed) | x | x | x | |
| smoking | roken (ja/nee) | 63638-1 (Loinc) & 77176002 (Snomed) | x | x | ||
| smoking_cigarettes | Hoeveel sigaretten per dag roken | 63640-7 (Loinc) | x | x | ||
| alcohol | Alcohol drinken | 897148007 (Snomed) | x | x | ||
| alcohol_Frequency | How often do you have a drink containing alcohol | 68518-0 (Loinc) | x | x | ||
| alcohol_normalConsumption | How many standard drinks containing alcohol do you have on a typical day? | 68519-8 (Loinc) | x | x | ||
| alcohol_excessiveConsumption | How often do you have 6 or more drinks on 1 occasion? | 68520-6 (Loinc) | x | x | ||
| birthdate | geboortedatum (dd/mm/yyyy) | 184099003 (Snomed) | x | x | x | |
| postcode | postcode | 184099003 (Snomed) | x | x | x | |
| work | werksituatie | / | x | x |
More information can be found in the sharepoint excel: Appendix 3. Alignering basis-set met parameters in project applicaties
An example of each observation can be found below:
@prefix fhir: <http://hl7.org/fhir/> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .
# Cholesterol Ratio
_:obs_chol_ratio a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "313811003" ] ;
fhir:display [ fhir:v "Cholesterol/HDL ratio" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "4.5"^^xsd:decimal ]
] .
# Total Cholesterol
_:obs_chol_total a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "77068002" ] ;
fhir:display [ fhir:v "Total Cholesterol" ] ] ;
fhir:valueQuantity [
fhir:value [ fhir:v "190"^^xsd:decimal ] ;
fhir:unit [ fhir:v "mg/dL" ]
] .
# HDL Cholesterol
_:obs_chol_hdl a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "102737005" ] ;
fhir:display [ fhir:v "HDL Cholesterol" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "50"^^xsd:decimal ] ;
fhir:unit [ fhir:v "mg/dL" ]
] .
# Length (Height)
_:obs_length a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "50373000" ] ;
fhir:display [ fhir:v "Body height" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "175"^^xsd:decimal ] ;
fhir:unit [ fhir:v "cm" ]
] .
# Weight
_:obs_weight a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "27113001" ] ;
fhir:display [ fhir:v "Body weight" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "70"^^xsd:decimal ] ;
fhir:unit [ fhir:v "kg" ]
] .
# BMI
_:obs_bmi a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "60621009" ] ;
fhir:display [ fhir:v "Body Mass Index (BMI)" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "22.9"^^xsd:decimal ] ;
fhir:unit [ fhir:v "kg/m²" ]
] .
# Waist Circumference
_:obs_waist a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "276361009" ] ;
fhir:display [ fhir:v "Waist Circumference" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "85"^^xsd:decimal ] ;
fhir:unit [ fhir:v "cm" ]
] .
# Systolic Blood Pressure (SBP)
_:obs_sbp a fhir:Observation ;
fhir:code [
fhir:system [ fhir:v "http://snomed.info/sct" ] ;
fhir:code [ fhir:v "271649006" ] ;
fhir:display [ fhir:v "Systolic blood pressure" ]
] ;
fhir:valueQuantity [
fhir:value [ fhir:v "120"^^xsd:decimal ] ;
fhir:unit [ fhir:v "mmHg" ]
] .
A resource of the type QuestionnaireResponse is stored as a FHIR resource at the following location in the users's pod:
<user pod>/weare/https%3A%2F%2Fwww.hl7.org%2Ffhir%2FQuestionnaireResponse/<uuid>.ttl